International Thalassaemia Day
Every year on May 8th, International Thalassaemia Day honors thalassaemia patients who are no longer with us.. It's also a day to honor the patients who are still alive and striving for a higher quality of life.
Thalassaemia is a genetic hemoglobin disorder... Hemoglobin, an iron-rich protein found in red blood cells, is the iron-rich protein found in red blood cells. Hemoglobin is a protein that helps oxygenate the blood. A person with thalassaemia has less than normal hemoglobin levels. This can make life very difficult, as it usually requires multiple blood transfusions. Any people with the disease need a blood transfusion every two weeks.
According to the most recent estimates, around 280 million people around the world have thalassaemia. About 439,000 people have a severe form of the disease. Thalassemia is most common among the following ethnic groups: Thalassaemia is most common in the following ethnic groups:
- Italian
- Greek
- Middle Eastern
- South Asian
- African
Thalassaemia can cause a variety of health signs in the body. These include anemia, exhaustion, dizziness, shortness of breath, an elevated risk of infections, and abdominal swelling. Those people with thalassaemia also have too much iron in their body. If the body has too much iron, it can damage the heart and liver.
Children with this illness are often left homeless, and children with this illness are more likely to suffer. They are slowing growing. This means they are slowing down. Children with thalassaemia may also have skull bones that are not shaped properly. For the majority of children, these signs appear within the first two years of life.
How to celebrate #internationalthalassaemiaday..
) is an international body that promotes thalassaemia (TIF) every year. These activities are intended to fuel discussions centering around the year's theme. Find out how you can support the TIF's work if you want to participate. You can also find out more about thalassaemia and other hemoglobin disorders, or donate blood. With #InternationalThalassaemiaDay, you can raise funds for this day..
The thalassaemia day in history of the international thalassaemia day has a long tradition
Panos Englezos, the president and founder of TIF, established International Thalassaemia Day in 1994. He established the day in honor of his son, George, who died of thalassaemia in his son. He created the holiday on June 1st. Every year the TIF develops a special theme for the day. New themes have been included: The following are examples from the latest themes:
The dawning of a new age of thalassaemia in 2020: the dawning of a new era for thalassaemia: it's time for a global effort to make novel therapies available and affordable to patients
Universal access to quality thalassaemia healthcare services: Building bridges for patients and patients. Thalassaemia: Past, Present, and Future: Documenting progress and patients' needs around the world. Get connected: Get connected: Get connected: Get information and experience, and fight for a better tomorrow in thalassaemia. In thalassaemia, there are safe and effective drugs available. 2016: Access to safe and effective drugs.
