World Duchenne Awareness Day
On September 7th, World Duchenne Awareness Day honors infant boys who live with Duchenne Muscular Dystrophy (DMD). It's also a day to raise concerns of this genetic disorder.
About 1 in every 5,000 boys are born with Duchenne Muscular Dystrophy (DMD). This genetic disorder is characterized by progressive muscle degeneration and weakness. Muscle degeneration is caused by a combination of a protein called dystrophin.. Dystrophin is the protein that maintains muscle cells intact. It's also responsible for muscle cell repair. For those who have DMD, this protein is also lacking in the brain. Children with DMD often have learning difficulties and behavioral difficulties as a result of their autism.
Girls can also be carriers of this disease, but are only moderately affected. Boys are more affected by the disease than ever. DMD also affects boys more than ever.
The following are common signs of DMD:
- Frequent falls
- Trouble getting up
- Walking and running are two extreme sports
- Abnormal gait
- Large calf muscles
- ilities are learning disabilities
- Heart problems
DMD is not cured. Corticosteroid therapy is the only safe treatment for DMD.. Prednisone daily supplements can help muscle endurance and function. Prednisone's muscle loss also slows as a result of muscle loss.
Certain forms of medications can also help with symptoms. These therapies include range-of-motion exercises, braces to keep muscles tight and flexible, and the use of mobility aids, such as wheelchairs and walkers... Oxy therapy may be required as the disease begins to weaken the respiratory muscles.
The life expectancy of those born with DMD has risen over the years as a result of these types of treatments and therapies. Boys with DMD will not be expected to see their teenage years for the first time at one time.. Now, however, those with DMD will most likely reach their 30s, 40s, and 50s.
#worldduchenneawarenessday is a worldwide phenomenon that has piqued our interest
The best way to participate in this day is to learn as much as you can about DMD. If you know someone with DMD, please tell them about their experience. Donate to the World Duchenne Organisation. You can also advocate for those with DMD and help raise concerns of the condition.. #WorldDuchenneAwarenessDay is a worldwide celebration that should be shared on social media. Be sure to post this day on social media with #WorldDuchenneAwarenessDay.
The world duchenne awareness day is a mark of history
DMD was the first diagnosis over 150 years ago. However, it has taken many years to fully understand the effects of this disease on the individual with DMD, as well as their families. Elizabeth Vroom and Nicoletta Madia founded the first World Duchenne Awareness Day in 2014 to raise funds, raising hopes, Elizabeth Vroom and Nicoletta Madia established the first World Duchenne Awareness Day in 2014. Both of them are active members of the World Duchenne Organisation. The World Duchenne Organization is a worldwide body of organizations. Since then, the day has become a worldwide phenomenon, with participants from around the world.
